The Toronto Star newspaper has an interesting article today that talks about a link discovered by researchers at Holland Bloorview Kids Rehabilitation Hospital and the Hospital for Sick Children.
The gist of the article is about the role genetics may play in those suffering from CP. Apparently “structural variations to the DNA that affect the genes for brain development and function” are a factor in 20% of cases and a major factor in 5%.
Genetic testing at early ages can be a great help in diagnosing children sooner. Genetic testing is currently used to aid in diagnosing and developing treatment for cystic fibrosis, muscular dystrophy and autism spectrum disorder.
I was contacted last week from a lady wanting information about the width of a doorway that is needed for a wheelchair to pass through easily. Although this seems like it should have a simple answer, it doesn’t.
After writing a rather long and complicated response by email, I thought it should be a topic that I should go into with more depth on the website.
So, I’ve added a page in the Articles section of the Mobilitybasics.ca website about wheelchair and doorway widths for those who are interested.
There is an interesting article in the Toronto Star the other day about how the system that is supposed to help people with disabilities live creates a wall that forces them to stay on social services by punishing those who try to get ahead.
It’s long been a pet peeve of mine that various governments feel that if you financially support disabled people at sub-poverty levels they will somehow miraculously get well and go back to work so they can eat. All this to encourage a few that may able to work to get a job and get off support services.
Most right leaning political parties are so worried about a few hundred, or thousand, people who may be abusing the system and receiving disability benefits improperly that they don’t mind starving tens of thousands of legitimately disabled people.
On Saturday I visited the Toronto Abilities Expo at the International Centre on Airport Road in Mississauga. This show was a three day public show to for manufacturers and dealers in the home health care industry to display their products to the public.
In addition to the product displays, there were many booths occupied by organisations whose purpose was solely to provide services to people with disabilities. One of these organizations is My Team Triumph Canada.
This organization teams up people with disabilities with able bodied helpers in order to allow them to participate in sporting events such as runs, marathons, triathlons, etc., that they normally wouldn’t be able to participate in. This organization is completely donor funded and provides it’s services at no cost to the participant. For more information on this services please visit: www.mttcanada.org/
I’m currently in the progress of updating the accessories section of the wheelchair seating area of the website. The original seating accessories page had very few products mentioned and not much information about what is there.
Proper seating requires the best possible pelvis position and stability. The Hip Supports and Seat Options page has a number of products and information on how positioning and stability can be achieved using aftermarket products.
As you may or may not know the Mobilitybasics.ca website is supported by our advertisers. These companies make it possible for our visitors to get all kinds of information relevant to disabilities and home medical equipment for free and without any requirement to sign up for newsletters or provide any personal information.
So, when one of our advertisers has something they want to promote I’m happy to oblige and help them any way I can. This helps them, me and our visitors.
I’ve added a page to the wheelchair section of the site today with information on Rowheels replacement wheelchair wheels. I came across these wheels when researching different types of alternative drive systems for manual wheelchairs and thought this was something many people may be interested in.
These wheels provide benefits to the user in terms of more efficient wheeling, improved posture, reduced shoulder injury, strengthened back muscles and improved range of motion.
These wheels, as the name suggests, propel the wheelchair when the user turns the hand rims backwards. Like a rowing a rowboat, the user pulls backwards to propel the wheelchair forward. The difference is, of course, the wheelchair user will be facing the direction they are going.
There is a lot of data and studies to support the theory of pulling back to propel forward and when I think about how one propels a wheelchair it actually starts to make sense.
While pulling backward to propel forward may have many benefits, I’m not sure that these are wheels that a long term wheelchair user could easily change over to. I’m sure the learning curve experienced by user will vary greatly and new wheelchair users will probably have less issues with this departure from normal wheel chair propulsion.
Okay, this is a little bit different from the normal stuff I post about but thought my visitors might be interested in it.
There is an article in the Toronto Star today about a little girl who uses a home made wheelchair built by her parents. The young girl is paralyzed below the arms by a tumor on her spine and there was no expectation she’d be able to even pull herself around on the floor for two or three years. Apparently it didn’t take long before she figured out that by pushing and pulling on the wheels she could move around their house independently.
Her mom went online looking for wheelchairs for toddlers and found a design that they could make at home for about $100.00 using an off the shelf toddler seat, a cutting board, a couple of small bike wheels and a couple of casters.
I’ve recently been looking at propulsion aids for people who have limitations that make propelling a wheelchair difficult. The last few wheelchair devices I added to the site were to make propulsion easier by using motors. Today I’ve added a page on the Neater Uni-Chair.
The Neater Uni-Chair is designed to provide people who only have the use of one foot and one hand independent mobility in a manual wheelchair. The Uni-Chair uses a single handrim that propels both wheels through a specialized differential and a movable footplate that allows the user to steer the wheelchair with their foot.
This chair is manufactured in the UK but is available in North America through their US distributer.
I’ve added a new product page to the website’s wheelchair section on the Xtender power assist wheels for manual Quickie wheelchairs. The Xtenders are options for Quickie wheelchairs only and can be added to compatible models at the time of purchase or as an add-on later.
The Xtenders are similar in theory to the Alber e-Motion wheels I added yesterday but have some specific differences. For one, they only are compatible with select Quickie Wheelchairs. Two, they are available in two models depending on the needs of the user. Three, they can be ordered with either Lithium or Nickel batteries. Four, the wheels actually communicate with each other to provide controlled tracking.